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I suffered from chronic cystitis for over ten years. I first started to get it severely from the age of nineteen. Almost every week I would have an attack, which would last for 4 hours, and then the rest of the day or night to recover. Sometimes an attack would last for three days.
My symptoms were shaking, sweating. The extreme discomfort in my bladder took over my whole body. It felt like I was passing shards of glass when I went for a wee. Sometimes there was blood.
Sex made my cystitis ...
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I had cystitis on and off for 7 years, it was complicated by the fact that I worked on boats so access to antibiotics was at times limited and I had to keep my own records to show to different doctors as I was constantly travelling. Finally antibiotics stopped working for me. (TMP is the only one that sort of helped at the end.) It was so painful and intensely disruptive to my life.
I now have me/cfs which is even more disruptive than cystitis, and while the cause of me/cfs is unknown, I ...
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